Interviews - Peter LIO


USA

ABOUT YOUR OWN STRUCTURE :


¬First of all, do you have an individual and/or collective approach?

-A collective approach with teaching and questions

¬How many children have today integrated the patient education programme in your department?

-We see children and adults  probably more than 100 now.

¬How many participants are there in the collective workshops and who are they (children, parents, other adults…)?

-We range from 4-10 families at a session—we have about ½ of the kids under 12 and ½ over 12 including adults. Usually family members attend with the patient (parents, siblings, spouses) and so we have from 10-30 people there.

¬Who is the educational staff for this programme (doctors, nurses, psychologists...)?

-Doctors and nurses, + invited speakers.

¬How many members of staff participate in this programme and what training, if any, do they receive ?

-There’s me, my nurse (who has been trained by me) and then the guest speakers.

¬What are the principal aims of these workshops?

-Go over the basic understanding of eczema etiopathogenesis and treatment and answer basic questions… then for support.

¬Do you use educational support tools and if so can you describe them?

-Yes, we have posters, handouts and videos—all on our website as well www.eczemacarecenter.com

¬Do private dermatologists participate in the Atopic school?

-No, but many send their patients.

¬How is the link established between the Atopic school and the dermatologists and paediatricians in private practice?

-It is open to all and slowly the word is getting out.

¬How is your Atopic school funded?

-By patient contributions only.

¬Do you have contact with other patient education teams, particularly those teams working with Asthma or Food Allergies.

-Allergy folks are heavily involved and speak twice per year.



PATIENT EDUCATION IN YOUR COUNTRY :


¬What role, if any, do parent associations/patient support groups, play in the Atopic schools?

-It seems like support is closely tied to the atopic schools in the examples I have heard in the U.S.A.

¬What role, if any, do schools play in managing chronic skin disease?

-I’m not sure generally—I think they represent a tiny group right not in the USA.

¬Do you have schemes like the PAI (in France this is an individualised adaptation project linking parents, children and teachers) ?

-Unknown to me.

¬Besides Atopic schools, is patient education developed for other pathologies in your country, and if yes, which pathologies are concerned?

-I know there are food allergy “schools” and some weight-reduction/obesity related programs.

¬Do you have official patient education recommendations/guidelines in your country?

-Unknown to me.

¬How many active education departments exist today in your country?

-Unknown to me—but I know of 3: Indiana University, U of California at San Diego and our program at Northwestern.

¬Are there particular organisations to train the staff in patient education? If not, where is the staff trained?

-I trained my own nurse.

¬How much do you invoice the whole education course?

-I’m not sure I understand this question.

¬How much is the patient reimbursed by the health authorities?

-Nothing.



Thank you Peter Lio.

Dr Peter Lio


Chicago,

USA.