Interviews - Carlo Gelmetti


Italy

Prof. Carlo Gelmetti


I.R.C.S.S

Ospedale Maggiore,

Milano,

Italy.

ABOUT YOUR OWN STRUCTURE :


  1. Puce First of all, do you have an individual and/or collective approach ?

We have a collective approach. A dermatologist, a pediatrician and/or an allergologist (with the help of a psychologist in some centres) meet parents and patients.


  1. Puce What type of patient comes to the atopic school ?

In Italy, to date, there is no consensus on this matter. In November 2007 a national conference will fix some common parameters.


  1. Puce How many children have today integrated the patient education programme in your department ?

Formally, no patient has been enrolled. Our programme will start next September

  1. Puce How many members of staff participate in this programme, what training do they receive and where do they train ?

One pediatric dermatologist, one pediatric allergologist and one neuropsychiatrist. They have participated in a full two-day course last year and they will work in the University Hospital.


  1. Puce Do private dermatologists participate in the atopic school ?

Not at present but it is possible that they will cooperate in some local situations.


  1. Puce Is your Atopic school attached to a network of care givers (pharmacists, nurses, state medical programs…) ?

Last year the “Italian Atopic School” organized a course for nurses. This year a similar course will be organized for pharmacists.


  1. Puce Do you have contact with other patient education teams, particularly those teams working with Asthma or Food Allergies ?

Yes (in Italy the Association “Allegria” deals with food or inhalants allergies).

If individual :


  1. Puce Can you describe how the first interview takes place and what objectives are set ?

There is a first visit, generally conducted by a dermatologist or a pediatrician in order to make the initial diagnosis. This first interview is carried out with the help of psychological test.


  1. Puce Who conducts the interview (doctors, nurses, psychologists..) and how long does it last ?

This is carried out by a doctor and it lasts around 30-45 minutes.


  1. Puce What type of educational support tools do you use ?

Booklets, illustrations, CDs and DVDs

  1. Puce How do you use these tools ?

Some (booklets) are given to the patients while others, (eg, DVDs) are borrowed.


  1. Puce Is there a follow-up ? If so, how is the follow-up organised, and who conducts it ?

There is a follow-up; it is organized according to the severity of the disease and it is conducted by

doctors.


  1. Puce How is the patient’s progress evaluated ?

Clinically with SCORAD, with QoL methods and with a psychological test both for patients and

parents.


If collective :

  1. Puce How many participants are there in the collective workshops and who are they (children, parents, other adults…) ?

    Not more than 30 (children and parents)

  1. Puce Who are the educational staff for this programme (doctors, nurses, psychologists..) ?
    Doctors, nurses and psychologists.


  1. Puce What are the principal aims of these workshops ?
    To illustrate basic knowledge about atopic dermatitis and how to cope with it.


  1. PuceDo you use educational support tools and if so can you describe them ?
    We use Booklets, illustrations, CDs and DVDs, and also Power Point presentations.


PATIENT EDUCATION IN YOUR COUNTRY :


  1. Puce What role, if any, do parent associations/patient support groups, play in the atopic schools ?

Today they only play a very small role.

  1. Puce Do you have schemes like the PAI (in France this is an individualised adaptation project linking parents, children and teachers ?

No we don’t.

  1. Puce Besides atopic schools, is patient education developed for other pathologies in your country, and if yes, which pathologies are concerned ?

Yes it is developed for Asthma, Diabetes; Lupus, Scleroderma

  1. Puce Do you have official patient education recommendations/guidelines in your country ?

Yes but they have not been updated.

  1. Puce How many active education departments exist today in your country ?

I don’t really know.


Thank you Carlo Gelmetti.