Interviews - Jean-Philippe Lacour


France

ABOUT YOUR OWN STRUCTURE :


  1. Puce First of all, do you have an individual and/or collective approach ?

We have an individual approach


   If individual ;


  1. Puce How many children have today integrated the patient education programme in your department ?

About 200 children have integrated the programme.


  1. Puce Can you describe how an initial interview takes place ?

We first present the Atopic school and the planning of the sessions. The patient fills out a standard questionnaire which allows us to get to know him/her and their medical history. Then there is a clinical examination followed by an open discussion about the patient’s understanding of their disease and their treatment and the problems they encounter. Then the team fix educative objectives with the patient and we use educative tools if possible. We finish by making appointments for the following sessions.


  1. Puce Who conducts the interview (doctors, nurses, psychologists..) ?

In general a doctor conducts the interviews but nurses frequently participate.


  1. Puce How long does it last ?

The first session lasts at least one hour.


  1. Puce What type of objectives are set during the initial interview ?

The objectives are fixed by the educative team along with the patient. Most of the time they are about learning to apply the treatment in a better way.


  1. Puce Do you use educational support tools and, if yes, what type of tools are used with the patient ?

Yes, we have several tools that we use: an Atopic Dermatitis explanatory booklet with images, Teddy Bear, Bus Adventure, Little Sheep, Educational pack.


  1. Puce How do you use these tools ?

Certain tools are used for explaining Atopic Dermatitis (booklet, teddy bear) while others are given to the patient to help him in the process of reaching his objectives (bus adventure, little sheep, educational pack).


  1. Puce Is there a follow-up ? If so, how is the follow-up organised, and who conducts it ?

Yes there is a systematic follow up. A follow up session is always fixed from the start. This session is conducted by a doctor and a nurse.


  1. Puce How is the patient’s progress evaluated ?

We evaluate the patient’s progress in the follow up session by checking wheteher the objectives have been reached or not. The patient may explain himself and demonstrate his understanding, but we also check the educational tools like the logbook or the bus chart.


  1. Puce How many members of staff participate in this programme and what training, if any, do they receive ?

The staff is one doctor and one nurse who have been trained by the IPCEM and who also participate in an annual meeting with the French Dermatology Society (SFD) patient education group.


  1. Puce Do private dermatologists participate in the Atopic school ?

No, not at all.


  1. Puce How is the link established between the Atopic school and the dermatologists and pediatricians in private practice ?

All patients referred by private Dermatologists are accepted but due to a lack of funding, we cannot meet the demand so we don’t advertise ourselves too much.


  1. Puce Is your Atopic school attached to a network of care givers (pharmacists, nurses, state medical programs…) ?

No it isn’t


  1. Puce How is your Atopic school funded ?

The educative sessions were initiated by a professor who was interested in patient education and was developed by a doctor and a nurse in our dermatology department. As such the sessions are integrated into our deprtment’s activities and are considered as any other hospital act.



ABOUT PATIENT EDUCATION IN YOUR COUNTRY:


  1. Puce What role, if any, do parent associations/patient support groups, play in the Atopic schools ?

None


  1. Puce What role, if any, do schools play in managing chronic skin disease ?

None, and there are often difficulties in applying the medical treatment at school.


  1. Puce Do you have schemes like the PAI (in France this is an individualised adaptation project linking parents, children and teachers) ?

Not to my knowledge.


  1. Puce Besides Atopic schools, is patient education developed for other pathologies in your country, and if yes, which pathologies are concerned ?

Yes, in dermatology it is developed for bullous epidermolysis and in the near future we will have a programme for Psoriasis. Several other education programmes have been developed but the oldest and best structured are for Diabetes and Asthma.


  1. Puce Do you have official patient education recommendations/guidelines in your country ?

A patient education group for dermatology has been set up within the French Dermatology Society and reference documents have been published for Atopic Dermatitis. I don’t know what the situation is for the other specialities.


  1. Puce How many active education departments exist today in your country ?

I don’t know


  1. Puce Are there particular organisations to train the staff in patient education? If not, where are the staff trained ?

The staff are trained at the National Patient Education Training Institute (IPCEM)


  1. Puce How much do you invoice the whole education course ?

Each session is invoiced as a specialist consultation


  1. Puce How much is the patient reimbursed by the health authorities ?

The patient is reimbursed on the basis of this specialist consultation


Thank you Dr. Chiaverini

Dr. Jean-Philippe Lacour

Dept Dermatology,

Hôpital L’Archet 2,

BP 3079, 06202,

Nice, Cedex 3, France.